Invisible Octopus
The reality of life
with the unpronounceable illness
Myalgic Encephalomyelitis
is hidden and fragile
M.E. as Invisible Octopus
acting as puppeteer
keeping me upright
or making me stumble at will
inflicting pain
challenging my brain
its crushing weight
taking my breath away
Rosie cheeks
looking well they say
summer is coming
happy thoughts will cure you
I live in a disbelieving world
my reality
trivialized
dismissed
My full time carers
witness Octopus’ destruction
for others I simply disappear
into the shadows
I am just one in this worldwide
community of hermits
where freedom of movement
is no longer a right
Transcending gravity
I fly among the birds
Their beauty and harmony
uplifting and strengthening
After a short flight
Octopus attacks
Pinning me down
immobilised
each moment is a death
Breathe
...
Each moment is a living
Finding peace in my solitude
I observe the dance of the trees
There is movement
in stillness
My creative mind
the visible thread
throughout this twenty-two-year long story
Transforming pain into poetry
© Corina Duyn 2020
~The ‘Invisible Octopus’ poem originally appeared here~
(Click the arrow to view Corina's award-winning shadow puppetry
art video-narrative of her poem)
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